Informational PDFs

Issues Affecting American Indians and Alaska Native Consumers with Disabilities (23 pages): A report on disability among American Indian and Alaska Native populations and related issues, including Indigenous perspectives on disability, health status statistics, and examples of programs serving Native individuals with disabilities.
Offering and Funding Home- and Community-Based Services in Indian Country (17 pages): An overview of ways that Native communities provide home- and community-based care, including common funding sources, five program profiles, and recommendations from program administrators.

Nursing Homes

Nursing Homes in Indian Country Report 2016 (14 pages): An overview of tribally operated nursing home facilities, including a look at facility ratings on the Medicare Nursing Home Compare website.
Nursing Homes in Indian Country Directory 2016 (5 pages): A directory of tribally run nursing homes currently operating that includes contact information and tribal affiliation for each facility.

Emerging CoC Service Issues in Indian Country

Emerging CoC Service Issues in Indian Country: Executive Summary (3 pages): A summary document that highlights three CoC topics and their related issues within Indian Country — CoC funding for HCBS, adult family homes, and Alzheimer’s and dementia.
Best Practices: Improving Care for Adults with Disabilities in Indian Country (9 pages): Highlights three tribal programs and their approaches to caring for adults with disabilities.
Emerging CoC Service Issues in Indian Country: Improving Care for Adults with Disabilities in Indian Country (10 pages): A report that highlights key themes from research on the overall adult population with disabilities as a framework for future studies on the topic of Native adults who have developmental and/or acquired disabilities.
Emerging CoC Service Issues in Indian Country: Rebalancing CoC Funding for HCBS (16 pages): A paper that provides a snapshot of the current information on efforts to rebalance CoC funding for HCBS in Indian Country and breaks down Medicaid funding information as well as provides insights from two current programs.
Emerging CoC Service Issues in Indian Country: Adult Family Homes (10 pages): A paper that provides a snapshot of Adult Family Homes. This is a care option that offers a viable solution for tribes that want to provide culturally appropriate, affordable, long-term care to elders or others in need of such services that keeps tribal members in the community.
Emerging CoC Service Issues in Indian Country: Alzheimer’s and Dementia (10 pages): A paper that provides a snapshot of current information about Alzheimer’s disease and dementia in Indian Country, barriers preventing diagnosis, and recommendations for tribal communities to take proactive measures to address challenges.
Emerging CoC Service issues in Indian Country: Caregiver Training (14 pages): A paper that provides a snapshot of the existing literature on caregiver training in Indian Country. The paper addresses the need for caregiver training, the evaluation of caregiver training programs, funding and recommendations that may help tribal programs and tribal communities improve and increase caregiver training.
Emerging CoC Service issues in Indian Country: Disability and Housing (15 pages): A paper that provides a snapshot of housing programs in tribal communities. The paper addresses the barriers that Native people with disabilities face, funding sources for programs and promising research focused on culturally relevant housing solutions for Native people with disabilities.
Emerging CoC Service issues in Indian Country: Assisted Living (17 pages): A paper that highlights stories from three tribal communities and their process of developing assisted living facilities, their challenges, successes and lessons learned.

Caregiver Support

CoC Service Research: Annotated Literature Review, Caregiver Support in Indian Country (40 pages): An annotated literature review that discusses the challenges of caregiver support in American Indian and Alaska Native communities, available support for caregivers, and recommendations to overcome barriers. The document includes a glossary of terms, a 4-page executive summary and 29 research sources.

Program Profiles

Fact sheets describe each program and present findings on successes and innovations, funding, lessons learned, and how each program addresses culture in providing caregiver support services.

Hospice and Palliative Care

Hospice and Palliative Care in Indian Country (2 pages): A fact sheet that analyzes, as a group, the four hospice programs that serve Indian Country.
Hospice in Indian Country: Literature Review (37 pages): A literature review paper that defines hospice and palliative care and explains access, use, and cultural issues for these care types for American Indian and Alaska Native populations. A 5-page report that overviews relevant issues, and gives detailed summaries for 25 additional research sources.
CoC Service Research: Hospice in Indian Country (11 pages): A literature review paper that reviews recent research underscoring the need to address barriers identified in the 2014 literature review by the Centers for Medicare and Medicaid Services, through infusing culture and values into end-of-life-care for Native populations. This 11-page report overviews the barriers and recommendations related to providing end-of-life care.
Caring for those nearing end-of-life: Providing compassion and dignity for our elders (1 page): An infographic giving a clear and colorful overview of hospice and palliative care and needs and strategies for providing it in tribal communities.

Program Profiles

These fact sheets describe each program and present their successes, innovations, funding, lessons learned, and approaches to the incorporation of culture in end-of-life care.

Cherokee Nation Home Health Services – Hospice of the Cherokee (2 pages)
University of New Mexico – Palliative Care (2 pages)
Tohono O’odham Nursing Care Authority – Tohono O’odham Hospice (2 pages)
Pueblo of Zuni – Zuni Home Health Care Agency (2 pages)

CoC Services for Native Veterans

CoC Research: CoC Services for Native Veterans (38 pages): A literature review that provides an overview of the CoC needs of American Indian and Alaska Native veterans, barriers to care, efforts by the Indian Health Service and the U.S. Department of Veterans Affairs, and recommendations to improve care. The document includes 25 summaries of research sources.

Program Profiles

These fact sheets describe programs that offer services to Native veterans and include successes, innovations, funding, and lessons learned.

Ho-Chunk Nation Division of Veterans Affairs (2 pages)
Lac Courte Oreilles Elder Services (2 pages)
Native American Veterans Association (2 pages)

Elder Abuse Prevention

Elder Abuse Prevention Resources in Indian Country: National Indigenous Elder Justice Initiative (Video): A webinar focused on the National Indigenous Elder Justice Initiative and the resources available to prevent elder abuse in Indian Country.
Best Practices in Elder Abuse Prevention: A Snapshot of Research Findings (1 page): An overview of elder abuse research, including types of abuse, challenges to addressing abuse, and recommendations for establishing elder abuse prevention programs.
Elder Abuse in Indian Country: An Annotated Bibliography (42 pages): A literature review paper that defines types of elder abuse, its causes, and approaches to its prevention, with special attention given to issues unique to American Indian and Alaska Native populations. The report content is followed by detailed summaries for 31 additional research sources.
Reclaiming What Is Sacred: Addressing Harm to Indigenous Elders and Developing a Tribal Response to Abuse in Later Life (60 pages): A report that explains the issue of elder abuse, offers strategies for preventing elder abuse in tribal communities, encourages communities to look closely at how elders are treated and to use local strategies to respond to abuse compassionately and effectively.

Program Profiles

These fact sheets offer program descriptions and present each program’s strategies for success, funding, lessons learned, and ways of attending to cultural considerations.