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You are here: Home / For Tribal Leaders / Funding LTSS in your Community

Funding LTSS in your Community

Who Pays For LTSS Services?

 

Long-Term Services and Support (LTSS) refers to a wide range of medical and personal care services that individuals might need, including nursing homes, assisted living, adult day care, and other types of support, lasting from weeks to years. Funding for these services comes mainly from Medicaid, which is the largest source, but also includes Medicare, various smaller programs, state initiatives, and the Department of Veterans Affairs.

For Indigenous communities, it’s important that LTSS services support elders living in tribal areas with home and community-based options that honor their cultural and historical significance.

It’s estimated that 70% of people over 65 will require some form of long-term care, but most health insurance plans, including Medicare, don’t cover these costs. Medicaid does offer some coverage, but it’s typically limited to those with lower incomes.

Medicaid

Medicaid is a crucial source of funding for Long-Term Services and Support (LTSS), aiding those with limited income to access essential medical care, including services not covered by Medicare like personal care. Tribal facilities must be equipped for electronic billing.

Benefits:

  • Funding is based on eligibility and services provided.
  • Tribal facilities can receive full federal funding for Medicaid services, enhancing their negotiating power and supporting individuals beyond traditional LTSS.
  • Includes funding for community and home-based services such as the Program of All-Inclusive Care for the Elderly (PACE) and Money Follows the Person (MFP).

Challenges:

  • Non-Indigenous patients at tribal facilities might not receive full federal reimbursement.
  • Not all services provided may be reimbursed by state Medicaid, requiring alternative funding sources.

Medicaid Waivers:

  • Offer state-defined services supporting community living.
  • Eligibility criteria vary, sometimes more lenient than standard Medicaid.
  • Some waivers protect assets, benefiting the spouse not requiring services.

Medicare

Medicare is a U.S. health insurance program mainly for individuals over 65 or those with certain disabilities and diseases. It’s important for healthcare providers, including tribal facilities, to manage electronic billing efficiently.

Advantages:

  • Offers up to 100 days of care in skilled nursing facilities, hospice, or some home health services.
  • Acts as a stable funding source for transitional care, aiding the shift of patients between their community and care facilities.

Limitations:

  • Limited to those over 65 or with specific conditions, excluding some individuals.
  • Does not cover every day unskilled care needs like help with daily activities or transportation.
  • Provides limited coverage for skilled nursing or home health care, not intended for ongoing care needs.
  • Obtaining Medicare certification can be challenging.

Indian Health Services

The Indian Health Service (IHS) now allows tribes to include Long-Term Services and Support (LTSS) in their self-governance agreements, thanks to the reauthorization of the Indian Health Care Improvement Act (2010).

Advantages:

  • LTSS can be funded through IHS, making it an approved use of funds.
  • Tribes can allocate IHS funds for roles and services not covered by other sources, such as community health representatives or visiting nurses for LTSS care.
  • IHS funds can cover LTSS services that are not eligible for state waiver programs, Medicaid, or Medicare.
  • Unlike other funding, IHS agreements can include costs for overhead and indirect support, not just direct care.

Limitations:

  • While LTSS is authorized under IHS, there’s no additional funding specifically for it. Tribes need to use their existing IHS budget to support LTSS.

Policy Background

In 2010, the Indian Health Care Improvement Act (IHCIA) was permanently reauthorized as part of healthcare reform. This reauthorization now allows the Indian Health Service (IHS) to cover Long-Term Services and Support (LTSS). This means tribes can include LTSS in their self-governance agreements with IHS.

This change makes it easier for tribes to include LTSS in their agreements with IHS. Before, tribes had to negotiate with IHS separately to include LTSS services in their agreements.

For a state to receive full federal funding (100%  Federal Medical Assistance Percentage (FMAP)) for LTSS provided by tribal health programs, LTSS must be explicitly added to a tribe’s IHS funding agreement. This full funding can help tribes negotiate better reimbursement rates from the state.

Unfortunately, no extra funds were provided to IHS to expand LTSS in Indian Country. Adding LTSS to allowable IHS services became a requirement without additional funding.

Long Term Care Insurance & Private Health Insurance

Long-term care insurance is a newer type of insurance designed specifically for Long-Term Services and Support (LTSS). Its coverage and costs may change over time, especially with healthcare reform.

Private health insurance, often provided by employers or available through the Health Insurance Marketplace, typically covers medically necessary long-term care for up to 100 days. You can explore the Marketplace for more details on plans covering certain long-term care services.

Advantages:

  • Long-term care insurance is tailored to support those with ongoing care needs.
  • Recent federal policies favor home- and community-based care over facility-based options.
  • Private health insurance may cover some long-term care, though with limitations.

Disadvantages:

  • American Indian and Alaska Native populations have lower rates of private insurance, making it less reliable as a funding source.
  • Covered services can vary significantly between insurance plans.
  • Long-term care insurance can be expensive, potentially dissuading tribal members from purchasing it.
  • Costs increase with age, making it less accessible for current LTSS patients.

Private Pay

Private Pay

Many people pay for their own long-term care. About half of all U.S. nursing home patients pay the costs of long-term care out of their own savings.

Pros

  • Paying privately for HCBS can help people stay longer in their homes.
  • If a person’s savings run out, he or she may then be able to qualify for Medicaid.
  • There are many options for paying privately, such as reverse mortgages, which allow homeowners to receive money against the value of their homes without selling them.

Cons

  • Those who have money saved may spend most or all of it on long-term care before they are eligible for Medicaid or other assistance.
  • Many people who need care may not have enough money to pay privately at all.

Tribal Support

For a tribe to financially support Long-Term Services and Support (LTSS) programs, it needs to be a priority for tribal leadership. However, changes in leadership could alter these priorities, leading to fluctuations in funding levels unless specifically outlined in a funding agreement.

Advantages:

  • Tribal support provides flexibility in how LTSS funds are utilized.
  • Empowers tribal communities to have greater control over their long-term care programs.

Disadvantages:

  • Convincing tribal leadership to prioritize LTSS programs may require significant time and effort in community education and funding advocacy.
  • Often, tribes must navigate processes to amend tribal codes and budgets to allocate funding for LTSS programs.

Grants

Grants

Pros

  • Grants are good for creating a new project or starting a program.

Cons

  • Grant funds only provide money for a limited amount of time. Grants may also require that the use of funds be limited to a specific set of activities.
  • Priorities of an individual grant organization may change over time, meaning you often cannot go back to the same grantor for more funding once a grant ends.

100% FMAP for CoC Services

Receiving 100% Federal Medical Assistance Percentage (FMAP) for CoC services provided to eligible patients through IHS or tribal programs can help tribes and states alike.

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Comparing Reimbursement Rates

The information is intended to provide you with a basic understanding of the issue so that you can move forward with choosing the right approach to ensure a strong funding strategy for your program.

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Financial Planning Steps

Preparing for your CoC program

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Money Follows the Person

The Money Follows the Person Rebalancing Demonstration Grant through CMS moves eligible people from nursing facilities back into the community

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Planning & Development Grants

Grant funding is one part of a comprehensive, integrated financing strategy. Grants can be helpful to support the early stages of program planning and development.

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PACE

Program of All-Inclusive Care for the Elderly (PACE) is a type of HCBS that provides medical services and supports everyday living needs for certain elderly individuals

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Working with your State

These steps offer general guidance on working with your state for CoC reimbursement.

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Best Practices for Billing

Need Intro

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Physical Address:
8500 Menaul Blvd. NE, Suite B-470
Albuquerque, NM 87112


Phone:
505-292-2001

© 2025 National Indian Council on Aging. All Rights Reserved.

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NICOA acknowledges that many sources of information from federal government websites, states, tribes, non-governmental organizations, and private entities were gathered to create this website. Those sources were used as templates on which we based the design and knowledge that is shared here. We appreciate the efforts of all to provide sound educational guidance on long term services and supports. The resources we find will continue to grow and change as we refine the website. See current list of website sources here.

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